The past few weeks have been like a bad dream. This is the same feeling I had after 9/11. The feeling that such bad things don't happen in my little corner of the world. Healthwise they have but nothing else that compares with that time or this. I feel a bit in shock. I rarely watch the news as it makes me feel sad and helpless. I have a cousin (my ex's cousin who decided to stay with me post divorce) who is stuck on Long Island. What a disaster they have been living in. No power until yesterday when they learned they only have it in a portion of their home. The bottom floor was destroyed along with all their possession that were on that floor. They were in a hotel, were kicked out (told the room had been reserved prior) and this Sunday will be staying in another hotel while the sheet rock in their home that is full of mold now gets replaced. She has a 9 year old son. They are still using a generator they were able to get about ten days ago. They sat in the dark and protected their home from looters. When they get it fixed they are thinking of going to California, where her husband was from and where she lived about ten years ago.
My mother has a couple staying with her, in the apartment attached to her house. He is the assistant minister at her church and someone who has been a faithful visitor to me while in the hospital despite the fact that I don't go to their church. He is married to a woman who was originally from Canada and a nurse. They are both about 70 years old. He purchased a laptop and we went over tonight to help him get it set up for my mother's wi fi. At his age he wasn't happy that he could only get a Windows 8 pc but he took it and Rob tried to help him navigate through it. Rob also helped him set up a printer. I was busy watching his wife painstakingly removed soaked pictures from an album. It was a lovely album she had made of her childhood. Most of the old photographs (such as her grandparents wedding photo) were one of a kind. She was placing them between paper towels to dry. With each photo she had written her memories or family stories. I was so touched reading them, especially the one where she was 8 and her father, a farmer, was killed in a tractor incident. Her story that accompanied it told of how her mother, now a widow with four children had to make do on $13 a week. She had just started piano lessons and her mother told her that she could continue with them. Only as an adult did she learn they were 50 cents each and realize what a sacrifice her mother had made. (Incidentally she plays the piano in her church and plays beautifully.) I could see the love in her face as she spoke of her mother and so gently handled the soggy photographs. This was difficult to see.
When you go into the grocery stores the shelves are once again stocked. I picked up a free turkey today (I had spent $300 on groceries in November to qualify.) I'm not sure I'm up to preparing a turkey dinner. I know Rob who worked all last weekend and will work this Saturday is not. It's not that I'm not grateful. I am overwhelmed with gratitude that our home was not damaged (except for one window sill which became water logged and must be replaced.) I am grateful that we were able, with the help of a high school friend to locate a generator and that my son had cash on hand to lend us to get it. ATMS were not working and all things required cash. I just feel broken hearted for all these people who lost so much. It will be years before their lives return to normal. In the case of the people I have written about while FEMA has been there their homeowners insurance has not and nothing can be done until they come and make decisions. FEMA gave them rent money. My mother told them to put it towards things they need right now. They are looking for a more permanent rental as my mother has all her stuff in that apartment. They want their own place and in fact, there is some doubt whether or not their house can be salvaged at this point. How do you start over in your seventies? They used to have their grandchildren one weekend a month. They can't do that at my mother's as there just isn't room in the apartment. I wish I had answers. I wish I could give them a big fat check to help them. I can only listen and sympathize. It seems like so little.
Friday, November 16, 2012
Saturday, November 10, 2012
Things Returning to Semi Normal.....Slowly
We have traffic lights again....YEA!!!!! There were a few diners and pizza places open.The grocery stores have power but the shelves in the freezer aisles are empty and elsewhere have little. I think people went out and stocked up before the hurricane and immediately afterwards, not realizing that they would lose power a second time. I have a few items in my freezer but not a lot. Our Shop Rite had few meats and Target had none. You have to wonder if all the stuff that should have been thrown out was.
My doctors offices finally have power and phones back. There are sections where people gain then lose power again. The power company says it's because they have to close down some places before bringing others on. Last night I talked to a cousin whose daughter is on Long Island with no power, no cell etc. The first floor of her house is flooded. They got the water out and had to throw out all their belongings on that floor but are staying in one room upstairs. Yesterday they finally got a generator. I think now many people who never considered getting one will be out buying one. I feel so fortunate to have one now. Ours is not a large one but will do for our smaller home.
I have noticed that fewer people seem to be blogging these days. Fewer people are commenting. I guess lives are just very busy. I miss comments though. Hope you are warm and safe wherever you are. I think in another week or so we will be back to routines in my town. The shore areas are another story.
My doctors offices finally have power and phones back. There are sections where people gain then lose power again. The power company says it's because they have to close down some places before bringing others on. Last night I talked to a cousin whose daughter is on Long Island with no power, no cell etc. The first floor of her house is flooded. They got the water out and had to throw out all their belongings on that floor but are staying in one room upstairs. Yesterday they finally got a generator. I think now many people who never considered getting one will be out buying one. I feel so fortunate to have one now. Ours is not a large one but will do for our smaller home.
I have noticed that fewer people seem to be blogging these days. Fewer people are commenting. I guess lives are just very busy. I miss comments though. Hope you are warm and safe wherever you are. I think in another week or so we will be back to routines in my town. The shore areas are another story.
Monday, November 05, 2012
Hurricane Sandy
Last week we knew a hurricane was coming up the east coast. We have been warned in the past about such things but never really had a problem before. Hurricane Sandy was a whole different story. It began with just rain and some high, strong winds. As the night progressed, we quickly lost our power (about 4 p.m. Monday.) Tuesday we still had wind and rain but towards the end of the day it was more of a steady drizzle yet still windy. My development looked so odd with no lights at all. It was pitch black without the street lights. Tuesday evening found two neighbors with generators and you could hear them running. It was about the only noise. On Monday we heard many explosions of power grids and saw blue flashes of lightning. I knew then it would be a few days before we would have power again.
I was very fortunate to have a wonderful neighobor who happens to be a police officer. He managed to call in some favors from his friends and one waited with a neighbor so he could obtain a generator. Another got him the gas and yet another delivered the item to his home where a few more helped him get it all set up. Once it was running, they came over and offered us a line we could use to power either a refrigerator or freezer. I alternated it back and forth but if this ever happens again, I will just put the important items in the freezer of the refrigerator and throw out the rest. On the second night, we got the idea to find a clock radio and plug that in. We also had my cpap machine plugged in and I slept on the sofa in the living room to get some real sleep after a sleepless night on Monday. By Thursday we were listening to the car radio once in awhile and realized the utter devastation to our state. We made our way out to the local grocery store which was being powered by generators. There were guards everywhere and they had lines for buying coffee, lines to pick up ice (limit two bags per family), and very long lines at the registers. For the first few days the gas stations and grocery stores would only accept cash. If you didn't already have cash you had a real problem because the banks were all closed. NO ATMS. No power anywhere. No traffic lights, no house phones and the cell phones were useless. We were able to get on Facebook a few times between 4 and 6 a.m. but never completed a phone call until later in the week...much later. Even then, it connected but the call dropped. Rob had a phone number to call and we had to go find someone with a working cell (Verizon seemed to be the only ones working) to call in and check each day to see if he needed to go into work or not.
Friday we knew that there would be a concert on NBC tv. Some of my favorites (Springsteen and Bon Jovi) were going to be on. We hated to miss that. The irony: they give a telethon to help but you can't see it. We sat outside in Rob's car with the heat running and listened to it. I just cried and cried hearing and learning more about the devastation that we had no way of seeing. When we had gone out I was overwhelmed by the uprooted huge trees, the lack of any traffic lights and the fact that no gas stations were open. Friday night we were so cold we could barely sleep, with several quilts on the bed. When we woke up Saturday I told Rob we needed to find somewhere warm to sleep that night. He called local hotels. No openings anywhere. Towards the afternoon my neighbor suggested we plug our line from his generator to the FIOS box and wa la we had phone service (not a cordless that was uncharged but an old fashioned phone.) I called my mother on her cell and she said that her power had come on 15 minutes ago. We high tailed it over there. We learned the tiny town near us had power and took a chance and called the pizza parlor. YES! They were open and we had pizza for dinner. That was so much easier than unplugging the fridge, moving out our stove to plug it in and heat up some frozen chicken strips from the garage! After we had the pizza my neighbor called my cell to let me know our power was back! YIPEE!!! We had brought over one load of laundry to my Mom's and we got that out of her dryer and headed back. There's no place like home...there's no place like home.....unless you have no power. Rob sprinted around the house putting things back in order.
I can never say enough how much we appreciate our next door neighbors Jonathan and Carmen. They were so very concerned about me having what I needed medically, offering to do so much and generously sharing their generator. My son brought over ten gallons of gas for us to contribute but we offered to pay for more and they wouldn't even accept it. I plan to get them a nice gift certificate to their favorite restaurant. Well, once I get my disability check which is now a week late! We had no mail Monday, Tuesday, Wednesday or Thursday. So I guess sleet etc is okay but not darkness. I need that check. I had to throw out food from my refrigerator and freezer because it was over 24 hours before we had electricity from the generator.
On Friday I had a cardiology appointment and I drove to their office. It was vacant. I have to get in touch with them first thing this morning. I am overdue for very important blood work. In fact, if they are not open I will have to try my pcp and then if that fails, an ER visit. I hope not.
There are many stories such as our brush with fire that will come in the near future. For now, I am enjoying the hum of my furnace and preparing to make hot oatmeal. The joys of the simple things. There are many people still without power as I type this. Yesterday we dropped off supplies to a shelter for seniors. They were running out of stuff. My beloved shore is a mess. The boardwalks are gone. The rides are in the ocean. I haven't felt this kind of devastation since 9 11. My heart breaks for those who lost their homes. Some are just underwater like my friend Richard's. He has a full basement of water and three feet on his first floor. He is retired and his wife works one day a week. They don't know how they will be able to replace. They are staying in the apartment of my mother's house for now. They had flood insurance (over a thousand dolllars a year) but it didn't cover their furnishings. That would have been $800 more which they couldn't afford. They consider themselves lucky because they still have their house. Their neighbor's house was pretty much underwater I think.
Take a moment and appreciate what you have. Just a warm cup of coffee in your warm home is a lot to be grateful for. It will be months before many people here can go home and some never will again. Pray for them, or at least think of them. I never thought this could happen here. You never know.
I was very fortunate to have a wonderful neighobor who happens to be a police officer. He managed to call in some favors from his friends and one waited with a neighbor so he could obtain a generator. Another got him the gas and yet another delivered the item to his home where a few more helped him get it all set up. Once it was running, they came over and offered us a line we could use to power either a refrigerator or freezer. I alternated it back and forth but if this ever happens again, I will just put the important items in the freezer of the refrigerator and throw out the rest. On the second night, we got the idea to find a clock radio and plug that in. We also had my cpap machine plugged in and I slept on the sofa in the living room to get some real sleep after a sleepless night on Monday. By Thursday we were listening to the car radio once in awhile and realized the utter devastation to our state. We made our way out to the local grocery store which was being powered by generators. There were guards everywhere and they had lines for buying coffee, lines to pick up ice (limit two bags per family), and very long lines at the registers. For the first few days the gas stations and grocery stores would only accept cash. If you didn't already have cash you had a real problem because the banks were all closed. NO ATMS. No power anywhere. No traffic lights, no house phones and the cell phones were useless. We were able to get on Facebook a few times between 4 and 6 a.m. but never completed a phone call until later in the week...much later. Even then, it connected but the call dropped. Rob had a phone number to call and we had to go find someone with a working cell (Verizon seemed to be the only ones working) to call in and check each day to see if he needed to go into work or not.
Friday we knew that there would be a concert on NBC tv. Some of my favorites (Springsteen and Bon Jovi) were going to be on. We hated to miss that. The irony: they give a telethon to help but you can't see it. We sat outside in Rob's car with the heat running and listened to it. I just cried and cried hearing and learning more about the devastation that we had no way of seeing. When we had gone out I was overwhelmed by the uprooted huge trees, the lack of any traffic lights and the fact that no gas stations were open. Friday night we were so cold we could barely sleep, with several quilts on the bed. When we woke up Saturday I told Rob we needed to find somewhere warm to sleep that night. He called local hotels. No openings anywhere. Towards the afternoon my neighbor suggested we plug our line from his generator to the FIOS box and wa la we had phone service (not a cordless that was uncharged but an old fashioned phone.) I called my mother on her cell and she said that her power had come on 15 minutes ago. We high tailed it over there. We learned the tiny town near us had power and took a chance and called the pizza parlor. YES! They were open and we had pizza for dinner. That was so much easier than unplugging the fridge, moving out our stove to plug it in and heat up some frozen chicken strips from the garage! After we had the pizza my neighbor called my cell to let me know our power was back! YIPEE!!! We had brought over one load of laundry to my Mom's and we got that out of her dryer and headed back. There's no place like home...there's no place like home.....unless you have no power. Rob sprinted around the house putting things back in order.
I can never say enough how much we appreciate our next door neighbors Jonathan and Carmen. They were so very concerned about me having what I needed medically, offering to do so much and generously sharing their generator. My son brought over ten gallons of gas for us to contribute but we offered to pay for more and they wouldn't even accept it. I plan to get them a nice gift certificate to their favorite restaurant. Well, once I get my disability check which is now a week late! We had no mail Monday, Tuesday, Wednesday or Thursday. So I guess sleet etc is okay but not darkness. I need that check. I had to throw out food from my refrigerator and freezer because it was over 24 hours before we had electricity from the generator.
On Friday I had a cardiology appointment and I drove to their office. It was vacant. I have to get in touch with them first thing this morning. I am overdue for very important blood work. In fact, if they are not open I will have to try my pcp and then if that fails, an ER visit. I hope not.
There are many stories such as our brush with fire that will come in the near future. For now, I am enjoying the hum of my furnace and preparing to make hot oatmeal. The joys of the simple things. There are many people still without power as I type this. Yesterday we dropped off supplies to a shelter for seniors. They were running out of stuff. My beloved shore is a mess. The boardwalks are gone. The rides are in the ocean. I haven't felt this kind of devastation since 9 11. My heart breaks for those who lost their homes. Some are just underwater like my friend Richard's. He has a full basement of water and three feet on his first floor. He is retired and his wife works one day a week. They don't know how they will be able to replace. They are staying in the apartment of my mother's house for now. They had flood insurance (over a thousand dolllars a year) but it didn't cover their furnishings. That would have been $800 more which they couldn't afford. They consider themselves lucky because they still have their house. Their neighbor's house was pretty much underwater I think.
Take a moment and appreciate what you have. Just a warm cup of coffee in your warm home is a lot to be grateful for. It will be months before many people here can go home and some never will again. Pray for them, or at least think of them. I never thought this could happen here. You never know.
Friday, October 19, 2012
Another Philly Visit
Thursday we made another visit to the PH specialist in Philly. We had to leave here by 6 a.m. in order to get there for 8 a.m. Nothing like doing a 6 minute walk first thing in the morning and before coffee. I did okay though except for some huffing and puffing. The doctor was not happy as I had gained 9 pounds which within a few minutes he could tell was fluid retention. This is not good. I have to admit that lately I got lazy, less diligent about my salt intake. Lesson learned. He also wants me to drop another ten pounds over the next three months and start some moderate excercise. I see my regular cardiologist on Monday and will discuss with him. It's always a balancing act keeping all the advice in my head because it isn't always the same. He feels the heart attack caused an insignificant amount of muscle damage but the other cardiologist saw the actual test and felt it caused some. More discussion with him on Monday.
It is a cold, rainy day here today. I am so glad we had nice weather yesterday. We were both so tired and I kind of wanted to do something else while in Philly but we had to have an unexpected echo done and that took a few hours. After that we had a quick lunch and Rob just wanted to get home. When we got home he took a two hour nap so I knew he was shot.
I have been busy working on the anecestry stuff. You think you have something all figured out and then you find something else that shakes it up. My great grandmother is listed in a family book as having her father be James McGowin. Now I found her death certificate with his brother's name. I will probably have an entry all about her murder and the investigation I am doing, along with the help of some fine, very kind people who are in Alabama. They are going to go to the cemetery she is supposed to be at since she is not listed on that cemeteries find a grave record. I am so grateful for their help and information. I am still learning how all this works. It's time consuming and complicated. It's also very rewarding. Little would this woman ever guess that someday her great granddaughter would be pursueing all this and trying to make sure she was buried with at least a headstone. If not, she will have one as quickly as I can take care of it.
It's a matter of honor. Speaking of which........don't know if any of you have thought about this but when I was a kid I always remembered to thank people for things. I called or wrote thank you notes and I taught my son to do this as well. I have so many nieces and nephews that I give gifts to and never get any kind of acknowledgement from. Sometimes you even wonder if they got it. I have begun cutting back on these gifts as I feel I am encouraging their behavior sometimes. I actually had a nephew who called to remind me that he had a birthday the next week. I sent a card and money which were never acknowledged. Since I sent cash we tried several times to reach him. When we finally did we were told that he had received it but was busy and didn't feel like answering the phone when we called. Where are the manners people used to have?
I don't want to stop giving but I also don't want to contribute to people's feelings of entitlement. Where to draw the line.....it's a sticky issue.Any thoughts?
It is a cold, rainy day here today. I am so glad we had nice weather yesterday. We were both so tired and I kind of wanted to do something else while in Philly but we had to have an unexpected echo done and that took a few hours. After that we had a quick lunch and Rob just wanted to get home. When we got home he took a two hour nap so I knew he was shot.
I have been busy working on the anecestry stuff. You think you have something all figured out and then you find something else that shakes it up. My great grandmother is listed in a family book as having her father be James McGowin. Now I found her death certificate with his brother's name. I will probably have an entry all about her murder and the investigation I am doing, along with the help of some fine, very kind people who are in Alabama. They are going to go to the cemetery she is supposed to be at since she is not listed on that cemeteries find a grave record. I am so grateful for their help and information. I am still learning how all this works. It's time consuming and complicated. It's also very rewarding. Little would this woman ever guess that someday her great granddaughter would be pursueing all this and trying to make sure she was buried with at least a headstone. If not, she will have one as quickly as I can take care of it.
It's a matter of honor. Speaking of which........don't know if any of you have thought about this but when I was a kid I always remembered to thank people for things. I called or wrote thank you notes and I taught my son to do this as well. I have so many nieces and nephews that I give gifts to and never get any kind of acknowledgement from. Sometimes you even wonder if they got it. I have begun cutting back on these gifts as I feel I am encouraging their behavior sometimes. I actually had a nephew who called to remind me that he had a birthday the next week. I sent a card and money which were never acknowledged. Since I sent cash we tried several times to reach him. When we finally did we were told that he had received it but was busy and didn't feel like answering the phone when we called. Where are the manners people used to have?
I don't want to stop giving but I also don't want to contribute to people's feelings of entitlement. Where to draw the line.....it's a sticky issue.Any thoughts?
Monday, October 15, 2012
Ancestry OCD
I have spent more and more time on Ancestry.com lately. It's as though I am on a mission. I often plan to spend only an hour or so and then boom, I glance at the clock and three or more hours have passed. I have made great headway on my family tree. I was very fortunate that my aunt and cousin had done so much work on my mother's side and are still working on it. My father's side has been another story. I must caution you that if your parents are still alive you need to pump them for any information they can give you. I found every detail helpful. My grandmother always claimed to have Native American blood. She had high cheekbones and she really seemed to know this as a fact. I am spending countless hours trying to prove this now.
I have found her ancestor, James Monroe Poston Sr. who attended a naming ceremony for the Creek Indians (which are called the Eastern Cherokees.) Apparently, the Cherokee nation at that time was mainly in Tennessee. What compounds the problem of identifying WHICH James Monroe Poston he is, or WHICH John Poston his father was, is that at that time there were no social security numbers. There are fathers with brothers who all name their children the same name, who are all born about the same time. There is controversy among families over which ancestor is THEIR ancestor and which is not. I wish I had the money to hire an expert some days.
I have been struggling with my PH medicine and the side effects from it. Once again my stomach is upset constantly. I have tried removing nearly every thing from my diet at one time or another and it seems to make no difference. Each night I find it difficult to sleep with acid reflux a constant problem. I also suffer from insomnia. Three nights ago I slept three hours out of twenty-four. I can't use my breathing machine when that happens and the following day I feel horrible. It takes me a few days to get over such a bad night. I keep hoping that after time my stomach will calm down but I have been on this medicine several months already.
On Thursday I will be going to Philadelphia to see my PH specialist. We need to discuss what the heart attack means as far as he's concerned and whether or not the NJ cardiologist should put me on a beta blocker, something normally done after a heart attack. I have dreaded yet another medicine. The blood thinners and PH medicine, thyroid and diuretics, along with potassium are enough. Trying to remember to make medicine about 8 times a day is frustrating for someone who is tired and oxygen deprived. I do a pretty good job with using two pill cases for days of the week. I rarely miss any doses.
I got to a craft show Friday night. I didn't really buy crafts but there were people selling silver jewelery and I got a necklace I had wanted. It's a Tiffany's knock off at a fraction of the price. I have been trying to buy Christmas gifts to put away a few at a time. Unless something changes this will be the last year we will be able to buy Christmas gifts for our extended families. After July I will have another loss of income which will be significant. At that time I will be transitioned over to Medicare as well. I had purchased some gift cards and cannot find them, still hoping they will turn up. They weren't large ones thank goodness.
Today is the third anniversary of my grandmother's passing. I miss her so much. It is also the birthday of a cousin who has been a part of my life since I was four months old. She is a wonderful person who is going through a difficult time now with her husband's health.
Hoping I can finally fall asleep. I have to be at the periodontist tomorrow for a deep cleaning.
I have found her ancestor, James Monroe Poston Sr. who attended a naming ceremony for the Creek Indians (which are called the Eastern Cherokees.) Apparently, the Cherokee nation at that time was mainly in Tennessee. What compounds the problem of identifying WHICH James Monroe Poston he is, or WHICH John Poston his father was, is that at that time there were no social security numbers. There are fathers with brothers who all name their children the same name, who are all born about the same time. There is controversy among families over which ancestor is THEIR ancestor and which is not. I wish I had the money to hire an expert some days.
I have been struggling with my PH medicine and the side effects from it. Once again my stomach is upset constantly. I have tried removing nearly every thing from my diet at one time or another and it seems to make no difference. Each night I find it difficult to sleep with acid reflux a constant problem. I also suffer from insomnia. Three nights ago I slept three hours out of twenty-four. I can't use my breathing machine when that happens and the following day I feel horrible. It takes me a few days to get over such a bad night. I keep hoping that after time my stomach will calm down but I have been on this medicine several months already.
On Thursday I will be going to Philadelphia to see my PH specialist. We need to discuss what the heart attack means as far as he's concerned and whether or not the NJ cardiologist should put me on a beta blocker, something normally done after a heart attack. I have dreaded yet another medicine. The blood thinners and PH medicine, thyroid and diuretics, along with potassium are enough. Trying to remember to make medicine about 8 times a day is frustrating for someone who is tired and oxygen deprived. I do a pretty good job with using two pill cases for days of the week. I rarely miss any doses.
I got to a craft show Friday night. I didn't really buy crafts but there were people selling silver jewelery and I got a necklace I had wanted. It's a Tiffany's knock off at a fraction of the price. I have been trying to buy Christmas gifts to put away a few at a time. Unless something changes this will be the last year we will be able to buy Christmas gifts for our extended families. After July I will have another loss of income which will be significant. At that time I will be transitioned over to Medicare as well. I had purchased some gift cards and cannot find them, still hoping they will turn up. They weren't large ones thank goodness.
Today is the third anniversary of my grandmother's passing. I miss her so much. It is also the birthday of a cousin who has been a part of my life since I was four months old. She is a wonderful person who is going through a difficult time now with her husband's health.
Hoping I can finally fall asleep. I have to be at the periodontist tomorrow for a deep cleaning.
Wednesday, October 03, 2012
Visiting with a Friend
(This is the GetzenDanner family crest (my great grandmother's family from Switzerland originally who married a German and moved To Germany)Monday, October 01, 2012
Hanging Around
The past two weeks I have been home a lot. Not so much by choice as necessity. I have been plagued with a problem that is embarassing to talk about. Remember that commercial where the woman pronounces diarrhea and it sounds like she is referring to a plague? For two weeks I have tried to adjust my diet, eaten mostly bananas, rice, toast, weak tea, ginger ale but nothing helps.
At this point, after Saturday night where I was up three times to go to the bathroom I have decided to see my primary care doctor. I have already spoken to the PH specialist in Philly who tells me it is not that medicine causing the problem. It seems a funny coincidence that my coumadin levels (blood thinner) have been higher than normal at about the same time this started but I have been told that is mere coincidence. I shall see what my internist says. She is very intelligent and insightful. I was lucky to get in to see her this afternoon since I just called this morning. She had a premature baby a few months back and has cut her office time down to three days a week.
Rob worked overtime Saturday morning but when he got home we had a quick lunch and went out for a few hours. There was a craft show just 20 minutes away and I haven't been to one in quite a while. We found a great sign that we both liked for Halloween for just $15.00. I will try to get a picture of it later. I also picked up some nice potpourris and metal dishes for them. There was a band playing with a good singer so we sat outside for awhile and just relaxed, sharing a funnel cake. We both needed to spend time away from our pets and phone. I love my pets dearly but they are quite demanding at times. They are very spoiled and being in the kitchen is a nightmare as I am dodging them at every turn while trying to cook anymore. We have actually at times put a gate up so they couldn't come into the room after I was tripped while making a quick turn. I fell on my chest and ended up with a hematoma in it that was painful. Duffy is a working dog (Shetland sheepdog) and he used to get a lot of excercise. He only weighs about twenty-five pounds but he pulls so hard on the leash at times that I can't walk him anymore. He needs to be excercised. We fenced in part of our yard for him and he has plenty of room to run around in but he just lays on the patio near the sliding door instead. I feel guilty and I actually offered to pay two neighbors to walk him a few times a week but they declined. He is nearly seven and only wants to play at bedtime. The cat is another story. He leaps through the air and runs and lands and is all about getting from here to there in five seconds. He is nearly 11.
Well, I need to start getting ready for the doctor. I have laundry to fold before I leave. This week I am going to see an old friend tomorrow and then on Friday I go for blood work and then later to the therapist so it seems I will have a busy week as it continues to fill up. I'm glad because Rob will be working at least an hour late each night this week. When he's not here I miss him. He keeps my mind on the good stuff and when I'm alone I sometimes begin to think about the what ifs. Now that the weather is cooler I am going to try to have better meals because I can put the oven on. Yesterday I baked a chicken and it was great to have that smell moving through the house. I want to pick up a brisket today and on Tuesday I will use the leftover chicken to make chicken divan. Just one more reason why I love Autumn.
At this point, after Saturday night where I was up three times to go to the bathroom I have decided to see my primary care doctor. I have already spoken to the PH specialist in Philly who tells me it is not that medicine causing the problem. It seems a funny coincidence that my coumadin levels (blood thinner) have been higher than normal at about the same time this started but I have been told that is mere coincidence. I shall see what my internist says. She is very intelligent and insightful. I was lucky to get in to see her this afternoon since I just called this morning. She had a premature baby a few months back and has cut her office time down to three days a week.
Rob worked overtime Saturday morning but when he got home we had a quick lunch and went out for a few hours. There was a craft show just 20 minutes away and I haven't been to one in quite a while. We found a great sign that we both liked for Halloween for just $15.00. I will try to get a picture of it later. I also picked up some nice potpourris and metal dishes for them. There was a band playing with a good singer so we sat outside for awhile and just relaxed, sharing a funnel cake. We both needed to spend time away from our pets and phone. I love my pets dearly but they are quite demanding at times. They are very spoiled and being in the kitchen is a nightmare as I am dodging them at every turn while trying to cook anymore. We have actually at times put a gate up so they couldn't come into the room after I was tripped while making a quick turn. I fell on my chest and ended up with a hematoma in it that was painful. Duffy is a working dog (Shetland sheepdog) and he used to get a lot of excercise. He only weighs about twenty-five pounds but he pulls so hard on the leash at times that I can't walk him anymore. He needs to be excercised. We fenced in part of our yard for him and he has plenty of room to run around in but he just lays on the patio near the sliding door instead. I feel guilty and I actually offered to pay two neighbors to walk him a few times a week but they declined. He is nearly seven and only wants to play at bedtime. The cat is another story. He leaps through the air and runs and lands and is all about getting from here to there in five seconds. He is nearly 11.
Well, I need to start getting ready for the doctor. I have laundry to fold before I leave. This week I am going to see an old friend tomorrow and then on Friday I go for blood work and then later to the therapist so it seems I will have a busy week as it continues to fill up. I'm glad because Rob will be working at least an hour late each night this week. When he's not here I miss him. He keeps my mind on the good stuff and when I'm alone I sometimes begin to think about the what ifs. Now that the weather is cooler I am going to try to have better meals because I can put the oven on. Yesterday I baked a chicken and it was great to have that smell moving through the house. I want to pick up a brisket today and on Tuesday I will use the leftover chicken to make chicken divan. Just one more reason why I love Autumn.
Thursday, September 20, 2012
Keeping Busy
I began going to a therapist a few weeks ago. She thinks that I have been thinking too much. She suggested I get out more and see people and do things that otherwise occupy my mind.
I came home and thought how much my aunt and cousin have enjoying researching for the family tree on Ancestry.com and I set up an account. I have spent countless hours on it and find it a great distraction and at times it's exciting. Other times it can be frustrating but such is life.
I also realized that I need to let go of the feeling of missing work so much. I didn't choose not to ever work again. It's the hand I was dealt and I must deal with it. Acceptance and finding the silver lining in the cloud has been my goal the past two weeks. My mother has been much better and when my sister visited my sister took us out for lunch.
Autumn, my VERY favorite season is here. I already have a bowl of freshly harvested apples on my table. My Halloween decorations are about and there is quite a chill in the air today. I really want a carmel covered apple. I was thinking of the fun of Halloween as a kid. It was the best! Not so much the candy but the dressing up and the parties had by friends. I miss the friends that I once had. It's hard to maintain friendships when people live far away and when your illness takes so much of your time and energy.
Well, my oxygen was just delivered and I must get over and walk my mother's Boston terrier. My mother fell and twisted her knee which is now in a brace. Her yard slopes and she can't manage going up and down it. Her little dog is very strong and it's hard for me. I really wish she would get rid of her big house and go to something with no stairs in an adult community. In fact, that is looking good to me already.
Enjoy the Autumn.
I came home and thought how much my aunt and cousin have enjoying researching for the family tree on Ancestry.com and I set up an account. I have spent countless hours on it and find it a great distraction and at times it's exciting. Other times it can be frustrating but such is life.
I also realized that I need to let go of the feeling of missing work so much. I didn't choose not to ever work again. It's the hand I was dealt and I must deal with it. Acceptance and finding the silver lining in the cloud has been my goal the past two weeks. My mother has been much better and when my sister visited my sister took us out for lunch.
Autumn, my VERY favorite season is here. I already have a bowl of freshly harvested apples on my table. My Halloween decorations are about and there is quite a chill in the air today. I really want a carmel covered apple. I was thinking of the fun of Halloween as a kid. It was the best! Not so much the candy but the dressing up and the parties had by friends. I miss the friends that I once had. It's hard to maintain friendships when people live far away and when your illness takes so much of your time and energy.
Well, my oxygen was just delivered and I must get over and walk my mother's Boston terrier. My mother fell and twisted her knee which is now in a brace. Her yard slopes and she can't manage going up and down it. Her little dog is very strong and it's hard for me. I really wish she would get rid of her big house and go to something with no stairs in an adult community. In fact, that is looking good to me already.
Enjoy the Autumn.
Wednesday, September 12, 2012
A Lovely Day
Today I had a wonderful day. I needed one...badly.
The past few days have consisted of me dealing with the cardiologist in New Jersey who has been in touch with my doctors in Philly. He returned on Monday and he called me Monday night at 10:30. He said that the report said I had a heart attack and he actually wanted to find out that it was wrong. He reviewed everything from my stress test and concluded that I had, in fact, had one. There is damage and since it is in the right side near where I had the bypass he felt that the bypass had closed off. The doctor in Philly who did the actual cardiac catherization on me told him that had that happened it would have been a very bad heart attack. I asked him how bad it was and he said that overall the stress test was bad but not horrible. I was relieved that the glass was half full. Now they will be rethinking about letting me go off of the blood thinner and when I do I may need to be hospitalized for about ten days getting IV heparin instead of being allowed to give myself the belly shots. You cannot have heparin at home because they draw blood like every six hours. Not sure how this will work out in the future as I have to go off it to have my lungs tapped and for other procedures.
Now for today. Today I got to meet my brother and sister-in-law's new puppy, Olivia. She is part terrier and a real cutie. I love puppies. I took her a great little toy that squeaks and realized it's about her size right now! My mother then took both of us out to a lovely Italian restaurant for lunch. I had penne vodka and a wonderful salad. The weather was great, we enjoyed our meal and playing with Olivia. I had forgotten just how sharp puppy teeth are! My sister-in-law, Leslie, is such a wonderful person. Every time we spend time together I come home feeling so happy. She was in a bad car accident a few years ago which required her to have a knee replacement. She had numerous problems with it and walks with a cane. Being on her leg for any amount of time causes her pain. This year she had to take an early retirement. She no longer drives as a result of all this. She is still always cheerful and thoughtful of others. She has helped me to understand a lot of my feelings.
Well, it's late. I just got done doing laundry. Rob is already fast asleep as are the pets.
It's been a long but wonderful day.
Today I had a wonderful day. I needed one...badly.
The past few days have consisted of me dealing with the cardiologist in New Jersey who has been in touch with my doctors in Philly. He returned on Monday and he called me Monday night at 10:30. He said that the report said I had a heart attack and he actually wanted to find out that it was wrong. He reviewed everything from my stress test and concluded that I had, in fact, had one. There is damage and since it is in the right side near where I had the bypass he felt that the bypass had closed off. The doctor in Philly who did the actual cardiac catherization on me told him that had that happened it would have been a very bad heart attack. I asked him how bad it was and he said that overall the stress test was bad but not horrible. I was relieved that the glass was half full. Now they will be rethinking about letting me go off of the blood thinner and when I do I may need to be hospitalized for about ten days getting IV heparin instead of being allowed to give myself the belly shots. You cannot have heparin at home because they draw blood like every six hours. Not sure how this will work out in the future as I have to go off it to have my lungs tapped and for other procedures.
Now for today. Today I got to meet my brother and sister-in-law's new puppy, Olivia. She is part terrier and a real cutie. I love puppies. I took her a great little toy that squeaks and realized it's about her size right now! My mother then took both of us out to a lovely Italian restaurant for lunch. I had penne vodka and a wonderful salad. The weather was great, we enjoyed our meal and playing with Olivia. I had forgotten just how sharp puppy teeth are! My sister-in-law, Leslie, is such a wonderful person. Every time we spend time together I come home feeling so happy. She was in a bad car accident a few years ago which required her to have a knee replacement. She had numerous problems with it and walks with a cane. Being on her leg for any amount of time causes her pain. This year she had to take an early retirement. She no longer drives as a result of all this. She is still always cheerful and thoughtful of others. She has helped me to understand a lot of my feelings.
Well, it's late. I just got done doing laundry. Rob is already fast asleep as are the pets.
It's been a long but wonderful day.
Saturday, September 08, 2012
Nuclear Stress Test
On Thursday I went and had my nuclear stress test. To be honest, it wasn't as bad as expected (with the exception of needing an IV.) What takes up to four hours was over in two because my NJ cardiology office is run like so well. They had it so cold in there that I was freezing and they even accommodated me with blankets while having something like a CT scan done and for the actual test. I wasn't allowed to actually walk on the tread mill but they used a chemical which in six minutes did the same thing. My doctor has a nurse practitioner in his office, Christine, who walked me through it and was very calming. When you've had as many medical tests as I have it's very easy to read people. Christine did a good job of looking calm, cool and collected but I glanced at the machine and saw some things which I thought were troublesome. At the end she wanted me to rest and recover a few minutes, then I was told to eat something, repeat of the scan pictures and then another EKG. I knew that was not normal, the last EKG. I noticed my doctor was not present in the office that day and was told that he was at a symposium. I would hear the results when he had a chance to review the test and call me.
This morning I got up and went for my second visit to my therapist. I really like her and find her to have great insights. We had a great session and then I had to go to two banks, pick up a baby gift at Macy's and then came home. Macy's had a phenomenal sale by the way. I got home and shortly afterwards my primary care physician called. "Nelle, I saw the results of your stress test. You've had a heart attack and there is a lot of ischemia. What is the cardiologist saying?" I told her that I had not spoken to him. I have gone to this primary care physician for about four years now. With all that has transpired, this is the first time I felt she was upset. She then explained that she felt the news should be given to me by the cardiologist who could explain what this means in detail. Obviously, the ischemia shows there was damage to the heart because that basically means there is little or no blood flow to an area.
I am sure I know when this happened. August 5 when all the drama was going on with my mother I had an abrupt and intense chest pain that lasted about five minutes. It was over quickly and I knew I was seeing the cardiologist the next day. I talked to him about it and he said that the EKG showed changes, lack of blood flow to a certain part of my heart so he wanted the nuclear stress test to see what had happened, if anything.
Lesson learned: Do not allow others to upset you.
I am trying to remain calm, not get upset. I fear that this is a sign that my heart is weakening overall. I fear having a heart attack while home alone. I fear surviving a massive heart attack. I woke up at 3:30 A.M. this morning. Couldn't go back to sleep so just got up. I keep telling myself not to panic. I will feel so much better once I hear from my cardiologist. I also had my primary fax the report to my Philly PH specialist, who is also a cardiologist. I want his take on it. I see him next month.
As the British say: keep calm and carry on. Easier said than done.
This morning I got up and went for my second visit to my therapist. I really like her and find her to have great insights. We had a great session and then I had to go to two banks, pick up a baby gift at Macy's and then came home. Macy's had a phenomenal sale by the way. I got home and shortly afterwards my primary care physician called. "Nelle, I saw the results of your stress test. You've had a heart attack and there is a lot of ischemia. What is the cardiologist saying?" I told her that I had not spoken to him. I have gone to this primary care physician for about four years now. With all that has transpired, this is the first time I felt she was upset. She then explained that she felt the news should be given to me by the cardiologist who could explain what this means in detail. Obviously, the ischemia shows there was damage to the heart because that basically means there is little or no blood flow to an area.
I am sure I know when this happened. August 5 when all the drama was going on with my mother I had an abrupt and intense chest pain that lasted about five minutes. It was over quickly and I knew I was seeing the cardiologist the next day. I talked to him about it and he said that the EKG showed changes, lack of blood flow to a certain part of my heart so he wanted the nuclear stress test to see what had happened, if anything.
Lesson learned: Do not allow others to upset you.
I am trying to remain calm, not get upset. I fear that this is a sign that my heart is weakening overall. I fear having a heart attack while home alone. I fear surviving a massive heart attack. I woke up at 3:30 A.M. this morning. Couldn't go back to sleep so just got up. I keep telling myself not to panic. I will feel so much better once I hear from my cardiologist. I also had my primary fax the report to my Philly PH specialist, who is also a cardiologist. I want his take on it. I see him next month.
As the British say: keep calm and carry on. Easier said than done.
Monday, September 03, 2012
Taking in a Stray
We have a lot of Halloween decorations but first I want to bring out the Fall items. It's raining here today so it would be a good day for it. We have taken a really laid back weekend here. Went out to dinner for our anniversary. I wasn't feeling great that day but we had a nice dinner and Rob surprised me with a bouquet of gerbera daisies and I gave him a pen handmade by my cousin's husband. It's really beautiful in dark blue and turquoise. He makes hand tooled pipes and pens. The pipes look like Native American peace pipes to me.
Well, Rob is finally awake. I let him sleep in this morning as he has gotten up early every other morning. It's been a nice 3 1/2 day weekend for him. We have caught up on reading. I have finished the last book of The Hunger Games series. I started a new Jodi Piccoult book.
This Thursday I have my nuclear stress test scheduled. I am not looking forward to it at all. The Philly PH doctor agreed that it should be done. Perhaps they will find out something new and helpful.
Happy Labor Day.
Thursday, August 30, 2012
Fall is Coming!
I am so excited about Fall coming. The crisp morning air tells me it is almost here. MY season. I already have plans to go to Amish country (Lancaster) with my sister-in-law sometime soon. The local apple orchards will be opening with their fresh pressed cider and the new crisp apples will soon be ready for picking. Ironic because my first tomato just ripened. I still have about twenty more on the vine that I will probably pick and let ripen indoors.
Today I will be meeting a new therapist. I am hoping I will really like her and find her helpful. There is just so much going on in my family of origin and I would like an outsider's take on it all. Rob is very supportive and so are two of my brothers and an aunt and a cousin but other than that it's been difficult. I have many neighbors who I talk with. Right now with the economy being so bad the three I talk with the most are struggling badly and one will be losing her home soon. I don't want to weigh them down with my issues.
Tomorrow is our tenth anniversary. It seems like just yesterday that we were getting married. I was so full of hope about our future. It was just two years later I was having my first open heart surgery, followed six months later by a breast cancer which took two more surgeries. Since then it seems that I have been struggling with one health issue or another. On the upside, I am still here. I plan to stay as long as I can, providing I can have some quality of life. Right now I can take care of myself. Rob has to help me do so much around the house. I wish I could afford an ocassional cleaning lady but that money would have to come from somewhere else. I can manage to do the laundry as I have both machines on the same floor as my bedroom. I can pick up a few groceries on my own but I need someone if I buy anything heavy. But I digress.....it's about Rob tomorrow. Have I mentioned lately how grateful I am to have Rob? Words are not enough to convey how I feel. When you are faced with your death you take a long, hard look at the people who have been a part of your life. I had so many friends years ago....so very many. After the first heart surgery I realized that most of them wanted to be around for the good times but not the bad. My friend Laura visited me a lot in the hospital. I will never forget her kindness and over the years have tried to return it several times. One other friend came once. When I got pneumonia my one neighbor came. As I got sicker and times got rougher friends vanished. Only one friend was there when my father died. My point is this: friends come and go. While we like to use terms such as "best friends" and we can love someone dearly as a friend, you really can't count on them. People are concerned with their needs and their lives. Rob is the person who has always been there for me. Through thick and thin, with laugher and tears. I realize how truly I am blessed. I wish everyone had a Rob (or female equivalent) in their lives. As humans we need others. My illness has also taught me to be caring to others. Many of you will never walk in my shoes. I would not wish this on anyone. I can only take the lessons I have learned and make them positives if anything good is to come out of my illness. I met an 83 year old woman the other day. She told me that she had been "as healthy as a horse" her entire life until two years ago. She was thin and played tennis everyday, up to two hours at a time. She jogged and was full of energy. All of a sudden she got heart valve disease and now is on oxygen 24/7. She needs the two valves replaced that I had done. She told me that she never thought anything like that could happen to her. She kept saying that at least she was healthy for 80 years and didn't know how at my age I could cope. I told her one reason I have been able to cope has been Rob. (My son has also been there for me, visiting me in the hospital and coming to Philadelphia. He calls everyday to see if I need help of any kind and tries to do anything he can to help.)
As I look back on my life I am happy not sad. I am grateful. I have beaten all the odds for survival. My doctors marvel at how much I have endured yet survived. I have lived more in my fifty plus years than many people do who live a boring lifetime. I have loved and been loved. The people who backed away for whatever reasons missed out. The friends I still have continue to support me and I am grateful for them too. Throughout life most people we meet we will be acquaintances. True friends are rare.
Happy tenth anniversary Rob. I don't think I would still be here if not for you. Your love inspires me, your care keeps me going and your faith in me sustains me. You're much more than I could have dared to hope for. Because of you, I feel truly blessed. I hope the best is yet to be.
Today I will be meeting a new therapist. I am hoping I will really like her and find her helpful. There is just so much going on in my family of origin and I would like an outsider's take on it all. Rob is very supportive and so are two of my brothers and an aunt and a cousin but other than that it's been difficult. I have many neighbors who I talk with. Right now with the economy being so bad the three I talk with the most are struggling badly and one will be losing her home soon. I don't want to weigh them down with my issues.
Tomorrow is our tenth anniversary. It seems like just yesterday that we were getting married. I was so full of hope about our future. It was just two years later I was having my first open heart surgery, followed six months later by a breast cancer which took two more surgeries. Since then it seems that I have been struggling with one health issue or another. On the upside, I am still here. I plan to stay as long as I can, providing I can have some quality of life. Right now I can take care of myself. Rob has to help me do so much around the house. I wish I could afford an ocassional cleaning lady but that money would have to come from somewhere else. I can manage to do the laundry as I have both machines on the same floor as my bedroom. I can pick up a few groceries on my own but I need someone if I buy anything heavy. But I digress.....it's about Rob tomorrow. Have I mentioned lately how grateful I am to have Rob? Words are not enough to convey how I feel. When you are faced with your death you take a long, hard look at the people who have been a part of your life. I had so many friends years ago....so very many. After the first heart surgery I realized that most of them wanted to be around for the good times but not the bad. My friend Laura visited me a lot in the hospital. I will never forget her kindness and over the years have tried to return it several times. One other friend came once. When I got pneumonia my one neighbor came. As I got sicker and times got rougher friends vanished. Only one friend was there when my father died. My point is this: friends come and go. While we like to use terms such as "best friends" and we can love someone dearly as a friend, you really can't count on them. People are concerned with their needs and their lives. Rob is the person who has always been there for me. Through thick and thin, with laugher and tears. I realize how truly I am blessed. I wish everyone had a Rob (or female equivalent) in their lives. As humans we need others. My illness has also taught me to be caring to others. Many of you will never walk in my shoes. I would not wish this on anyone. I can only take the lessons I have learned and make them positives if anything good is to come out of my illness. I met an 83 year old woman the other day. She told me that she had been "as healthy as a horse" her entire life until two years ago. She was thin and played tennis everyday, up to two hours at a time. She jogged and was full of energy. All of a sudden she got heart valve disease and now is on oxygen 24/7. She needs the two valves replaced that I had done. She told me that she never thought anything like that could happen to her. She kept saying that at least she was healthy for 80 years and didn't know how at my age I could cope. I told her one reason I have been able to cope has been Rob. (My son has also been there for me, visiting me in the hospital and coming to Philadelphia. He calls everyday to see if I need help of any kind and tries to do anything he can to help.)
As I look back on my life I am happy not sad. I am grateful. I have beaten all the odds for survival. My doctors marvel at how much I have endured yet survived. I have lived more in my fifty plus years than many people do who live a boring lifetime. I have loved and been loved. The people who backed away for whatever reasons missed out. The friends I still have continue to support me and I am grateful for them too. Throughout life most people we meet we will be acquaintances. True friends are rare.
Friday, August 24, 2012
This and That
The insomnia is really wearing me down. Many nights I get four hours sleep or less. Last night I could fall asleep but couldn't stay asleep. It was a gorgeous beach day but I couldn't have made it. It's been a hard week for me. Whenever I went anywhere I was plagued with the breathlessness.
One day I took the new car to the dealer. The Sirius radio works intermittenly and has for months. Each time we took it there they blew us off because it worked by the time they checked it out. This time we had no radio the day before and I insisted they keep looking. They sent me home in a rental car after I was there three hours and then called me a few hours later telling me to come pick it up. They told me the radio is a computer and is malfunctioning. Many other people have the same problem and Nissan is working on a fix. When they find it, I will be called back for the repair. In the meantime we paid for the radio service and there is no refund. It's so disappointing to be having a problem with a new vehicle. At least it's not a problem that interferes with us using the car. When the satellite radio is out, we can still listen to FM or play CDs which I find puzzling.
Many of my neighbors have had great vacations. One was in Florida (all expenses paid for her and her children), came back and a week later enjoyed a vacation in Myrtle Beach, S.C. I am happy for her but she is someone who often complains to me about how hard she has it. I haven't been away for one night in years. My mother won't allow us to use her vacation home in upstate New York unless we take her and her dog with us. That would not be a vacation and I would have to arrange for oxygen to be there which is very involved. There is no money for a real vacation. At times I get very frustrated. I am home so much of the time. Often I am lonely and bored. I have begun reading again and am almost done with the second book in The Hunger Games series. We saw the movie the other night which I found very disappointing as compared to reading the book. I also finished Fifty Shades of Grey. I wish I had a hobby I could do at home. I know it will be better when it's not so hot outside and I can enjoy my patio. I have grown tomatoes this year but couldn't take on anything more.
I have an appointment to see a therapist next week. I think I need a fresh perspective on many things.
I still struggle at times wondering where my "friends" are. Some have been great but others have vanished. There have just been way too many changes in the past few years. It's a lot to deal with. I'm hoping the therapist can help me find ways to do so.
One day I took the new car to the dealer. The Sirius radio works intermittenly and has for months. Each time we took it there they blew us off because it worked by the time they checked it out. This time we had no radio the day before and I insisted they keep looking. They sent me home in a rental car after I was there three hours and then called me a few hours later telling me to come pick it up. They told me the radio is a computer and is malfunctioning. Many other people have the same problem and Nissan is working on a fix. When they find it, I will be called back for the repair. In the meantime we paid for the radio service and there is no refund. It's so disappointing to be having a problem with a new vehicle. At least it's not a problem that interferes with us using the car. When the satellite radio is out, we can still listen to FM or play CDs which I find puzzling.
Many of my neighbors have had great vacations. One was in Florida (all expenses paid for her and her children), came back and a week later enjoyed a vacation in Myrtle Beach, S.C. I am happy for her but she is someone who often complains to me about how hard she has it. I haven't been away for one night in years. My mother won't allow us to use her vacation home in upstate New York unless we take her and her dog with us. That would not be a vacation and I would have to arrange for oxygen to be there which is very involved. There is no money for a real vacation. At times I get very frustrated. I am home so much of the time. Often I am lonely and bored. I have begun reading again and am almost done with the second book in The Hunger Games series. We saw the movie the other night which I found very disappointing as compared to reading the book. I also finished Fifty Shades of Grey. I wish I had a hobby I could do at home. I know it will be better when it's not so hot outside and I can enjoy my patio. I have grown tomatoes this year but couldn't take on anything more.
I have an appointment to see a therapist next week. I think I need a fresh perspective on many things.
I still struggle at times wondering where my "friends" are. Some have been great but others have vanished. There have just been way too many changes in the past few years. It's a lot to deal with. I'm hoping the therapist can help me find ways to do so.
Sunday, August 19, 2012
Swallowing the Bitter Pill
My friend Roz used to say sometimes we had to "swallow the bitter pill." I hated that expression and when she first mentioned this about thirty years ago I thought it was absurd. Now, in my middle years, I get it. Last Saturday I did just that. Rob and I went to Popeye's for chicken. It's about a 45 minute ride and I know my mother loves it. Our neighbor gave us a coupon to buy 11 pieces and get 11 more FREE. I could not resist. I took a box of about 7 pieces to her along with biscuits I bought her. We pulled up and Rob took it to her door. She never even came out to the car to say hello but did call later and thank me. She acts like nothing ever happened. I have just accepted that at eighty years old she may be having some sort of dimentia. I am not calling her a lot as I once did, or going over. I just don't want anything to happen to one of us with the other not even speaking. My father was the generous of my parents. He was tough but when the chips were down he was in your corner, at least most of the time. My mother only thinks about herself. When I recently told her about a cousin I have (the daughter of someone she feels very close to) who was in dire straights and needed some help she lectured me that I could not afford to help anyone. I just let her go on and sent money she needs never know about. Since my father's death she has made very expensive changes to her house which include redoing bathrooms, new sidewalks etc. During this time I was struggling but there was never an offer of help. Being a mother myself, I find this hard to understand. My mother has always been this way, this isn't something new. I have received countless lectures from "friends' over the years that I need to accept her as she is. Easy for them to say. I think I am more accepting now than I have been but it still hurts when you see your parent has little concern for you.
I learned this week that I will be getting an extension on a third party disability claim. It was bittersweet. The fact that I qualify for it means that this company (who rarely approves this) has a medical team who feels there is 0 chance of recovery and no possibility that I can ever work again, in any capacity. The good news is that for another year I can pay my bills and have a bit more than I need. I am going September 6th for a nuclear stress test. I am nervous about it. That will hopefully give the doctor some answers. My EKG has big changes to it and that is normally not good. He thinks he knows what happened (I have for the first time, excluding post surgical pain, had chest pains.) We shall see.
I am trying to make the most of each day. I have been battling insomnia but just had two consecutive nights of sleep so am encouraged about that. Yesterday we finished the living room paint job (okay I was just an assistant and couldn't do any real painting) and went to Longhorn for lunch to celebrate. Our living room is now thoroughly clean. I am getting a jump on Fall cleaning which never happened last year. My kitchen had a good cleaning too. My closets have been half emptied with Goodwill receiving many donations. All my clothes will now fit in one closet. Not that I bought so much but over the years it accumulated and I rarely got rid of things. For the winter I will need some dress slacks and maybe a blazer. I kept just one in a smaller size from my old stuff. I need to go shopping. Right now it seems like the stores are all having summer clearance. I did pick up some capri jeans and a few tops at TJ Maxx. I might splurge for a winter coat. Not sure yet. The anticipation is half the fun. I did splurge at the Coach Factory Outlet and get myself a black leather bag for a deal. It was $139 with a 30% off coupon. My cousin already sent me the little "pony" for it. For those who don't know that's a little silk tie that can be tied in various ways. I really needed a good bag and my winter boots are black so it will be perfect. Hurry Fall!
I learned this week that I will be getting an extension on a third party disability claim. It was bittersweet. The fact that I qualify for it means that this company (who rarely approves this) has a medical team who feels there is 0 chance of recovery and no possibility that I can ever work again, in any capacity. The good news is that for another year I can pay my bills and have a bit more than I need. I am going September 6th for a nuclear stress test. I am nervous about it. That will hopefully give the doctor some answers. My EKG has big changes to it and that is normally not good. He thinks he knows what happened (I have for the first time, excluding post surgical pain, had chest pains.) We shall see.
I am trying to make the most of each day. I have been battling insomnia but just had two consecutive nights of sleep so am encouraged about that. Yesterday we finished the living room paint job (okay I was just an assistant and couldn't do any real painting) and went to Longhorn for lunch to celebrate. Our living room is now thoroughly clean. I am getting a jump on Fall cleaning which never happened last year. My kitchen had a good cleaning too. My closets have been half emptied with Goodwill receiving many donations. All my clothes will now fit in one closet. Not that I bought so much but over the years it accumulated and I rarely got rid of things. For the winter I will need some dress slacks and maybe a blazer. I kept just one in a smaller size from my old stuff. I need to go shopping. Right now it seems like the stores are all having summer clearance. I did pick up some capri jeans and a few tops at TJ Maxx. I might splurge for a winter coat. Not sure yet. The anticipation is half the fun. I did splurge at the Coach Factory Outlet and get myself a black leather bag for a deal. It was $139 with a 30% off coupon. My cousin already sent me the little "pony" for it. For those who don't know that's a little silk tie that can be tied in various ways. I really needed a good bag and my winter boots are black so it will be perfect. Hurry Fall!
Wednesday, August 08, 2012
Sorting Things Out
This week I began sorting through my clothes. I had many professional outfits, suits, dress slacks, blouses, blazers that I no longer needed. I remembered hearing about an organization called Dress for Success who provide women trying to enter the job force with an interview suit. If the woman gets hired, they will give her four more outfits. They even collect and provide accessories such as scarves and jewelery. I was so thrilled to donate about six suits, six blazers, eight pairs of dress slacks, two cardigans, hosiery and an almost brand new pair of nice shoes. My friend went with me and she made about four trips to the car to carry it all in. As I was leaving I got a bit overwhelmed. I didn't expect to have to stop working for a few more years. It's been a difficult adjustment for me. I miss my coworkers and the income I had become used to. I also miss my health insurance from my employer which covered much more. My friend Monica was so great and supportive. We went out to lunch and had a nice visit. When we were leaving the restaurant my friend just walked up and gave me the biggest hug and told me how much my friendship meant to her and how much she loved me. That was the best medicine ever. I told her that when I thought about her the other day she had always been there in the hard times for me. I came home feeling so much better. I dropped off some other things that were not dress clothes and some household items to Goodwill on the way home.
Today I got up and decided to go to the factory outlets. I called my sister-in-law who was excited to go with me. She loves to shop. We bought some Christmas gifts (great bargains) at the Coach and Yankee Candle stores and then went for lunch. We chatted and laughed and again I was really enjoying myself. My sister-in-law was injured in a car accident and has had numerous surgeries on her one leg. It will never be what it once was and she has pain in it, a lot. She understands what it is like to have to stop working years before you planned to. She knows the frustration of having surgery and then learning that the situation remained unchanged. Still, we manage to laugh and have some fun. She's a lovely person.
On Monday I saw my NJ cardiologist. It was a disappointing visit. There are some new problems and I will need another stress test before we know what has happened. In the meantime I am trying to focus on the positive. Dr. A told me he heard more fluid in/around the lungs. Ugh. One day at at time.
Tonight we had freshly grown NJ corn on the cob and cantaloupe I bought at a farm market earlier today. I have a watermelon, zucchini, scallions and Romaine lettuce I also purchased. The joys of summer.
Today I got up and decided to go to the factory outlets. I called my sister-in-law who was excited to go with me. She loves to shop. We bought some Christmas gifts (great bargains) at the Coach and Yankee Candle stores and then went for lunch. We chatted and laughed and again I was really enjoying myself. My sister-in-law was injured in a car accident and has had numerous surgeries on her one leg. It will never be what it once was and she has pain in it, a lot. She understands what it is like to have to stop working years before you planned to. She knows the frustration of having surgery and then learning that the situation remained unchanged. Still, we manage to laugh and have some fun. She's a lovely person.
On Monday I saw my NJ cardiologist. It was a disappointing visit. There are some new problems and I will need another stress test before we know what has happened. In the meantime I am trying to focus on the positive. Dr. A told me he heard more fluid in/around the lungs. Ugh. One day at at time.
Tonight we had freshly grown NJ corn on the cob and cantaloupe I bought at a farm market earlier today. I have a watermelon, zucchini, scallions and Romaine lettuce I also purchased. The joys of summer.
Sunday, July 29, 2012
Growing Pains?
When we were kids and felt angst over anything my mother said we were having "growing pains." This always stuck with me for some odd reason. I am having these now.
I have always been an "open book" but as I get sicker and learn more about the medicine that didn't work and what my lab tests reveal I find that I am wanting to be more private about this personal information. I deleted my Facebook at first. Days later I removed about fifty people and reactivated it (this is the one I had set up for work and some old friends found it.) There is currently a lot of people I went to school with sending me invites to be friends but for the first time I want more privacy.
There are many issues going on. My mother has not called or spoken to me in three weeks because she didn't like how I responded to some accusations she made against me. Things that happened over a dozen years ago and to me are ancient history are things she wants to question my character about now. Sorry, I am not going to have that. I am a grown woman. I don't beat her over the head over things she did that I didn't like and she will have to learn to be respectful or we won't be communicating. She knows what I am going through and seems unconcerned. I do believe a part of her is in denial but come on.....enough already.
I have several neighbors who are in a financial crisis. One for certain is losing her home. They hint for help and a part of me wants to help them but I am struggling myself. Also, when I speak with them they have just gone out to dinner or done something that I don't do when money is in short supply. Gas is over three dollars a gallon and I try to plan my trips and many days stay home just to avoid spending money. One of them will think nothing of driving over an hour each way. Sorry but to me these are not things that make me want to help you. I have never counted on anyone to help me out financially. So many people feel entitled to that help.
My new medicine is causing me to have sleep disorders. Rob tells me that I am moody. I feel somewhat moody but not sure it's the medicine exactly. I think it's more that I need to use my energy to deal with all the things I have learned. If my new medicine doesn't work I am in serious trouble in the not so distant future. My PH remains in the severe category. Lab tests show my heart is under a great strain from it. I just want to enjoy my husband, son, pets and garden. I just want some peace and serenity. I feel like George Costanza (a Seinfeld character) who gets highly agitated and screams "Serenity now!" Don't misunderstand......I welcome friends to confide in me and sometimes hearing their problems is a good distraction from my own. That's not a neighbor wanting you to help them out in a financial way. Well, I am going to finish cleaning up the kitchen. It rained last night and a bit today but the sun is out now, filling the kitchen with light. Chef Rob is going to make us chicken piccata for dinner. Yummy. I will make linguine to go with it and a cucumber salad. I love fine dining in the privacy of our own home. We will put on music and have candles and a glass of white wine. Hope you do something that feeds your spirit.
I have always been an "open book" but as I get sicker and learn more about the medicine that didn't work and what my lab tests reveal I find that I am wanting to be more private about this personal information. I deleted my Facebook at first. Days later I removed about fifty people and reactivated it (this is the one I had set up for work and some old friends found it.) There is currently a lot of people I went to school with sending me invites to be friends but for the first time I want more privacy.
There are many issues going on. My mother has not called or spoken to me in three weeks because she didn't like how I responded to some accusations she made against me. Things that happened over a dozen years ago and to me are ancient history are things she wants to question my character about now. Sorry, I am not going to have that. I am a grown woman. I don't beat her over the head over things she did that I didn't like and she will have to learn to be respectful or we won't be communicating. She knows what I am going through and seems unconcerned. I do believe a part of her is in denial but come on.....enough already.
I have several neighbors who are in a financial crisis. One for certain is losing her home. They hint for help and a part of me wants to help them but I am struggling myself. Also, when I speak with them they have just gone out to dinner or done something that I don't do when money is in short supply. Gas is over three dollars a gallon and I try to plan my trips and many days stay home just to avoid spending money. One of them will think nothing of driving over an hour each way. Sorry but to me these are not things that make me want to help you. I have never counted on anyone to help me out financially. So many people feel entitled to that help.
My new medicine is causing me to have sleep disorders. Rob tells me that I am moody. I feel somewhat moody but not sure it's the medicine exactly. I think it's more that I need to use my energy to deal with all the things I have learned. If my new medicine doesn't work I am in serious trouble in the not so distant future. My PH remains in the severe category. Lab tests show my heart is under a great strain from it. I just want to enjoy my husband, son, pets and garden. I just want some peace and serenity. I feel like George Costanza (a Seinfeld character) who gets highly agitated and screams "Serenity now!" Don't misunderstand......I welcome friends to confide in me and sometimes hearing their problems is a good distraction from my own. That's not a neighbor wanting you to help them out in a financial way. Well, I am going to finish cleaning up the kitchen. It rained last night and a bit today but the sun is out now, filling the kitchen with light. Chef Rob is going to make us chicken piccata for dinner. Yummy. I will make linguine to go with it and a cucumber salad. I love fine dining in the privacy of our own home. We will put on music and have candles and a glass of white wine. Hope you do something that feeds your spirit.
Sunday, July 22, 2012
Hectic but Good
Yesterday was a hectic day. My son arrived early and wanted me to go with him to a car dealership. They sent him a postcard that he had won something (turned out to be two lottery tickets neither of which was a winner.) We both needed to go to the bank and we did that too. We got back and he took out his really nice bike and rode it home. Rob and I went to the Princeton area to try out Joe's Crab Shack which I have been wanting to go to for years. I will tell you a little about my background before continuing with the visit to Joe's. I grew up in Maryland (with a few early years in Norfolk, Virginia) and when I was born my parents had a tiny house on the Chesapeake Bay. It was a small island, Broom's Island and my uncle had a big house there. Uncle Dick was THE character in our family. He adored children and his only child died shortly after birth. He did everything he could to entertain his nieces, nephews and their children. Often we would have watermelon picnics on his huge front lawn. The adults sat in chairs on his porch and it was a time of great fun. Later my grandparents bought property, as did several of my great aunts. We spent several summers there with cousins from York, Pennsylvania and a grand time was had by all. We laid on the beach we walked up a path too and we crabbed from the pier. My grandmother was a great crabber. She loved the soft shells and I can picture her now with her crabbing net and sneakers around the pier. Uncle Dick had a boat we would go out on. He was a great fisherman and used eels for bait on crab lines. Many evenings were spent at my grandmother's eating freshly cooked crabs which had been boiled in Old Bay seasoning. That and Uncle Dick's own watermelons were some of my favorite memories of that lost time and place.
Joe's is known for their crabs. July is a special month I think of my grandmother. My birthday is the 8th and her's was the 15th. She often told me I was the best birthday present she ever got. How I miss her. On my birthday I was too sick to go out and have a good meal so Rob took me yesterday. I had some Queen crabs that were fixed Chesapeake style and honestly, they tasted like hers. I had a steamer pot which also had shrimp and a lobster, corn on the cob and a few small potatoes. While I liked lobster tails and claws I wasn't prepared to see my crustacean with his eyes still intact. I couldn't eat him. Brought him home to a neighbor who loves lobster. I had my crab legs which is what I really wanted. Joe's is pricey and not sure I would want to go again. I did realize yesterday how most of my really wonderful childhood memories are of my grandmother. My mother was not a warm person. It was my grandmother who kissed us at every opportunity and told us how much we were loved. I want to cry because I miss her but instead I smile because I had her. How beautiful to leave your family a legacy of love.
I finally got my new medicine and began it Friday afternoon. I am not having the severe side effects I experienced with the first. Hopefully it will work. Right now I am having some breathing difficulties. I have the oxygen and the portable tank so I am okay, just inconvenienced. It's going to be another beautiful day here and we are defrosting chicken for the grill. It's the little things that truly matter.
Joe's is known for their crabs. July is a special month I think of my grandmother. My birthday is the 8th and her's was the 15th. She often told me I was the best birthday present she ever got. How I miss her. On my birthday I was too sick to go out and have a good meal so Rob took me yesterday. I had some Queen crabs that were fixed Chesapeake style and honestly, they tasted like hers. I had a steamer pot which also had shrimp and a lobster, corn on the cob and a few small potatoes. While I liked lobster tails and claws I wasn't prepared to see my crustacean with his eyes still intact. I couldn't eat him. Brought him home to a neighbor who loves lobster. I had my crab legs which is what I really wanted. Joe's is pricey and not sure I would want to go again. I did realize yesterday how most of my really wonderful childhood memories are of my grandmother. My mother was not a warm person. It was my grandmother who kissed us at every opportunity and told us how much we were loved. I want to cry because I miss her but instead I smile because I had her. How beautiful to leave your family a legacy of love.
I finally got my new medicine and began it Friday afternoon. I am not having the severe side effects I experienced with the first. Hopefully it will work. Right now I am having some breathing difficulties. I have the oxygen and the portable tank so I am okay, just inconvenienced. It's going to be another beautiful day here and we are defrosting chicken for the grill. It's the little things that truly matter.
Wednesday, July 18, 2012
The Joy of Laundry
Two days ago my dryer just stopped working. It was distressing as I had paid $240.00 a year ago to get it repaired. It's ten years old and I wrestled with whether or not to get an estimate on a repair. I called a company that had rave reviews and they came out for $65.00. They told me it was the timer and it would be a repair of over $250.00. I really hate throwing things out IF I can get them reapaired so I was going to bite the bullet and do it. The $65 estimate would count towards the repair. Their repairman took a deep breath and told me I was crazy to consider it. He said things are not built to last anymore and that next week another part could break and I was better off putting the money towards a new appliance. Rob and I discussed it and I wanted to kick myself for having spent the $65 to have it looked at. We went to the new appliance store PC Richard and I got a comparable replacement for $399 plus delivery and new hose stuff. It was $100 more but I got the guy to give us a break. I told him it probably wouldn't be long before I would be back buying the matching washer and a stove. The delivery guy was very nice and my laundry service is back in business. I already have clothes in the dryer and two more loads will be making their way there later in the day.
This has been a really tough week for me (and it's only Wednesday.) I am still trying to get a drug pay assistance card from Pfizer. Both the speciality pharmacy and my doctor's nurse practioner are trying to help me too but so far nothing. This plan just went into place two weeks ago and they don't seem to have worked out the kinks. In the meantime, I don't have my new medicine to start. What has arrived are the medical bills for my lung being tapped and my last visit in Philly. Seven grand for ONE day! My insurance pays the bulk but I will be left owing about $1500 for the procedure and visit. That's just too much for me. Somedays I wonder if I can afford the medical care I am receiving. It gets depressing. Since my birthday I have collapsed into tears several times. This is not typical of me. I am not sleeping as well either.
The other day a "friend" called to complain to me about her problems. I couldn't believe how she went on and on about her job (I would LOVE to be able to work and have my income back), her husband (someone she should have divorced years ago but never would because of his earning power) and her son (who she has spoiled rotten and no one including her can stand.) I let her ramble for quite awhile and then calmly told her that these were all things she had the power to change. I told her how lucky she is that she can change the situations. I then told her that it is very difficult for me when I am dealing with things that I have no control over to feel sorry for people who won't help themselves. I think I am losing patience with people who never appreciate what they have and only see the negative. Life is short. I struggle to make mine the best it can be. At times I get overwhelmed but it passes and I move forward. It's the only way to get where I need to go.
This has been a really tough week for me (and it's only Wednesday.) I am still trying to get a drug pay assistance card from Pfizer. Both the speciality pharmacy and my doctor's nurse practioner are trying to help me too but so far nothing. This plan just went into place two weeks ago and they don't seem to have worked out the kinks. In the meantime, I don't have my new medicine to start. What has arrived are the medical bills for my lung being tapped and my last visit in Philly. Seven grand for ONE day! My insurance pays the bulk but I will be left owing about $1500 for the procedure and visit. That's just too much for me. Somedays I wonder if I can afford the medical care I am receiving. It gets depressing. Since my birthday I have collapsed into tears several times. This is not typical of me. I am not sleeping as well either.
The other day a "friend" called to complain to me about her problems. I couldn't believe how she went on and on about her job (I would LOVE to be able to work and have my income back), her husband (someone she should have divorced years ago but never would because of his earning power) and her son (who she has spoiled rotten and no one including her can stand.) I let her ramble for quite awhile and then calmly told her that these were all things she had the power to change. I told her how lucky she is that she can change the situations. I then told her that it is very difficult for me when I am dealing with things that I have no control over to feel sorry for people who won't help themselves. I think I am losing patience with people who never appreciate what they have and only see the negative. Life is short. I struggle to make mine the best it can be. At times I get overwhelmed but it passes and I move forward. It's the only way to get where I need to go.
Sunday, July 15, 2012
Waiting for Copay Assitance
I am fighting to hang in there so to speak. I got approval from my medical company that they will cover all but $450.00 per MONTH of the new medicine I need. Needless to say with my income so drastically cut, I cannot afford that copay. I have been in touch for about ten days with Pfizer the drug company for copay assistance and am waiting for them to complete that so I can get on my much needed new medicine. These companies do have assistance for the orphan drugs which are so expensive. Based on my income, my copay may be only $4 per month. That's some difference. In the meantime my fluid retention and breathing battles continue. They really can't keep the fluid off without risking my kidneys so I do the best I can.
This past week I wrote the blog entry about my birthday. On Monday my mother began to make accusations against me from something my EX told her 13 years ago. My reaction: are you kidding me????? She then interrogated my son who was not happy. I have never told him the details of my divorce from his Dad. He shouldn't be burdened with all that. My mother claims she went to my old house and spoke to my ex and he told her things which both he and my son swear he did not. I am now wondering if she has some form of dementia. Regardless, my plate overflows and I am not taking on her issues right now. She never worried about mine and right now is unconcerned with how the stress of her attack has affected me. She has never even called back to say she was sorry for the manner in which she spoke to me. I'm sure she isn't.
I finally got my birthday present from Rob. I had wanted a back splash, made of glass. I had really wanted the sea glass one but the problem was it was very light and wouldn't go. The one I selected has different colors, some light, some dark. It took us nearly all day to get on the wall but I think will look good. Rob is ready to grout it in a few minutes with the antique white grout I selected. It was more of an undertaking than I thought it would be. This past week my mother-in-law and aunt both sent cards with money. We used some Friday night to go out for dinner and this morning we went to a great breakfast place called The Turning Point. They have ceramic skillets with potatoes on the bottom and your eggs on top. You can get variations such as bacon, avocado slices etc and they are very tasty. We both enjoyed it very much .Eating out is now a treat and something we rarely do. That was the easiest thing to hack from our budget.
I have deleted my Facebook. I just find too many people want to know what is going on in your life but really are not a part of it. I tend to be an open book but now with my health declining, I am feeling I want more privacy. I cannot grasp why some people want to claim to be your friend and have no personal contact but just post a comment once in awhile on Facebook. That is not me. The vast majority of people on mine are people I see or at least talk to. It seems very artificial in many ways to me. More and more I feel that many people don't understand the difference between friends and acquaintances. Friendships take work and if left dormant they slip away.
This past week I wrote the blog entry about my birthday. On Monday my mother began to make accusations against me from something my EX told her 13 years ago. My reaction: are you kidding me????? She then interrogated my son who was not happy. I have never told him the details of my divorce from his Dad. He shouldn't be burdened with all that. My mother claims she went to my old house and spoke to my ex and he told her things which both he and my son swear he did not. I am now wondering if she has some form of dementia. Regardless, my plate overflows and I am not taking on her issues right now. She never worried about mine and right now is unconcerned with how the stress of her attack has affected me. She has never even called back to say she was sorry for the manner in which she spoke to me. I'm sure she isn't.
I have deleted my Facebook. I just find too many people want to know what is going on in your life but really are not a part of it. I tend to be an open book but now with my health declining, I am feeling I want more privacy. I cannot grasp why some people want to claim to be your friend and have no personal contact but just post a comment once in awhile on Facebook. That is not me. The vast majority of people on mine are people I see or at least talk to. It seems very artificial in many ways to me. More and more I feel that many people don't understand the difference between friends and acquaintances. Friendships take work and if left dormant they slip away.
Thursday, July 12, 2012
Honesty isn't always the pretty route..............
I would like to tell you about what a wonderful birthday I had. I really would....but it wouldn't be true. I have always prided myself on being an honest person. This is what happened............
My sister was supposed to come the weekend before my birthday weekend. That would have been good. Instead she changed her plans at the last minute and told my mother she would be here for my birthday weekend. I told my mother that knowing what always played out things would not go well. My sister wanted to go to a picnic with her friend on July 4th and planned to come the following day and go to a flea market about 45 mins. away. I told my mother immediately this was NOT a good idea for me as I could not be in the heat and walk that far (with or without oxygen.) My mother kept pushing me and then that morning my sister called and said that they would only go as far as I could. This is one of those instances where you say why didn't I just do what I knew was right for me and stay home? We went and I was shocked by how many vendors there were. I agreed to go up and down a few aisles but I was finding it very difficult to breathe and the heat was wearing me out. I held up as long as I could and insisted we go into the air conditioned buildings. My mother who is 80 looked as though she was ready to collapse and when we got inside there was an elderly gentleman who had passed out. We then went to the part where they sold Amish crafts and food. My mother always wants to buy whatever is cheapest but I wanted a lunch so she and my sister got sandwiches while I had roasted chicken with veggies. After that my sister wanted to make a detour and ride by the house she lived in 30 or so years ago, then my old house and then we went home. I was exhausted. Friday morning she got my mother up at 5:30 a.m. so they could go to the beach and just watch the waves then they did a lot of shopping. That night Rob and I went to the beach and walked on the beach ourselves. On Saturday my mother and her did their usual local flea market, then to numerous stores and a yard sale and then called for me to come see her daughter's wedding album in the afternoon. I went and while there my sister stated she would love fried chicken. I said we could go to Popeyes which I had coupons for and I drove about 45 mins. to get there only to find they were closed for renovations. My sister then suggested KFC. I explained I don't eat that as the oil disturbs my stomach but she really wanted it so I drove her and my mother there to get some. After that I drove them home, came home, gave Rob his KFC while I had a PB&J. About 9 p.m. my sister shows up at my door with a Slurpee for me. I was half asleep but she came in and wanted to talk about a family matter which she blamed me for. Since then I have verified that there is no truth to this, that in fact she took some facts, put them together to come up with the wrong conclusion. I was very upset and couldn't even sleep. When I can't sleep I am not using my breathing machine nor getting the oxygen I normally do. I was feeling awful the next morning. My birthday morning. Rob had a card for me. He was supposed to do a backsplash of tile in the kitchen of tiles that look like seaglass that I had picked out. In fact, I thought being gone Saturday would give him the opportunity to start it. He didn't even have the tiles. My son called and wanted us to meet him and go out for lunch. We went and I was feeling so poorly that I couldn't even go into the restaurant and felt I needed to get home on the oxygen again. I was just home resting when my sister called wanting to come over. Rob told her I was not up to company. I was still upset by the previous evening and I just wanted to rest. She later called again and insisted she drop off my mother's card and her gift. (My mother had told me she would be leaving first thing Sunday and I thought that then we would go out for dinner. Rob didn't get me a cake as I had planned to have cake out.) Apparently she had changed her mind and was now going to spend the night. Another plan out the window. I ended up having a few frozen pieces of chicken for my dinner. I had half a bagel in the morning. So much for my birthday: no meal, no cake and feeling crappy all day.
The following day when my sister left I told my mother how upset I was. My mother insists that I am upset with Rob, not my sister, and said she had not agreed to go out to dinner with us anyway. Nice. Last night I was in bed by 9. I am not feeling well. I learned that the medicine I was taking has not worked and they are busy getting me approval for another. I wish some people would a. think of others b. get the facts straight before accusing someone of something they never did c. learn to say they're sorry when they made a mistake. I'm really tired of people who can have an opinion on everything without facts.
My sister was supposed to come the weekend before my birthday weekend. That would have been good. Instead she changed her plans at the last minute and told my mother she would be here for my birthday weekend. I told my mother that knowing what always played out things would not go well. My sister wanted to go to a picnic with her friend on July 4th and planned to come the following day and go to a flea market about 45 mins. away. I told my mother immediately this was NOT a good idea for me as I could not be in the heat and walk that far (with or without oxygen.) My mother kept pushing me and then that morning my sister called and said that they would only go as far as I could. This is one of those instances where you say why didn't I just do what I knew was right for me and stay home? We went and I was shocked by how many vendors there were. I agreed to go up and down a few aisles but I was finding it very difficult to breathe and the heat was wearing me out. I held up as long as I could and insisted we go into the air conditioned buildings. My mother who is 80 looked as though she was ready to collapse and when we got inside there was an elderly gentleman who had passed out. We then went to the part where they sold Amish crafts and food. My mother always wants to buy whatever is cheapest but I wanted a lunch so she and my sister got sandwiches while I had roasted chicken with veggies. After that my sister wanted to make a detour and ride by the house she lived in 30 or so years ago, then my old house and then we went home. I was exhausted. Friday morning she got my mother up at 5:30 a.m. so they could go to the beach and just watch the waves then they did a lot of shopping. That night Rob and I went to the beach and walked on the beach ourselves. On Saturday my mother and her did their usual local flea market, then to numerous stores and a yard sale and then called for me to come see her daughter's wedding album in the afternoon. I went and while there my sister stated she would love fried chicken. I said we could go to Popeyes which I had coupons for and I drove about 45 mins. to get there only to find they were closed for renovations. My sister then suggested KFC. I explained I don't eat that as the oil disturbs my stomach but she really wanted it so I drove her and my mother there to get some. After that I drove them home, came home, gave Rob his KFC while I had a PB&J. About 9 p.m. my sister shows up at my door with a Slurpee for me. I was half asleep but she came in and wanted to talk about a family matter which she blamed me for. Since then I have verified that there is no truth to this, that in fact she took some facts, put them together to come up with the wrong conclusion. I was very upset and couldn't even sleep. When I can't sleep I am not using my breathing machine nor getting the oxygen I normally do. I was feeling awful the next morning. My birthday morning. Rob had a card for me. He was supposed to do a backsplash of tile in the kitchen of tiles that look like seaglass that I had picked out. In fact, I thought being gone Saturday would give him the opportunity to start it. He didn't even have the tiles. My son called and wanted us to meet him and go out for lunch. We went and I was feeling so poorly that I couldn't even go into the restaurant and felt I needed to get home on the oxygen again. I was just home resting when my sister called wanting to come over. Rob told her I was not up to company. I was still upset by the previous evening and I just wanted to rest. She later called again and insisted she drop off my mother's card and her gift. (My mother had told me she would be leaving first thing Sunday and I thought that then we would go out for dinner. Rob didn't get me a cake as I had planned to have cake out.) Apparently she had changed her mind and was now going to spend the night. Another plan out the window. I ended up having a few frozen pieces of chicken for my dinner. I had half a bagel in the morning. So much for my birthday: no meal, no cake and feeling crappy all day.
The following day when my sister left I told my mother how upset I was. My mother insists that I am upset with Rob, not my sister, and said she had not agreed to go out to dinner with us anyway. Nice. Last night I was in bed by 9. I am not feeling well. I learned that the medicine I was taking has not worked and they are busy getting me approval for another. I wish some people would a. think of others b. get the facts straight before accusing someone of something they never did c. learn to say they're sorry when they made a mistake. I'm really tired of people who can have an opinion on everything without facts.
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